Sydney Speaks: Mobilising Communities for Social Change

City of Sydney Talk Panel, August 2011

 "Those who say it can't be done should get out of the way of those already doing it." - Anna Rose

There's nothing more engaging than getting a dynamic group of people together, putting them on a stage in a beautiful venue (say the City Recital Hall for example) and encouraging them to wax lyrical on personal empowerment, community and major social issues. The City of Sydney Talk earlier this week, 'Mobilising communities and citizens: dynamic action in a world of social change' ticked all the aforementioned boxes and then added a beautiful lyrical performance by Mr Percival to boot. If you've ever had any reservations that social activism can lead to real and meaningful change then you haven't met Brett Solomon, Executive Director of Access Now; Anna Rose, Co-founder and Chair of the Australian Youth Climate Coalition (AYCC); Darryl Nichols, Executive Director of Garage Sale Trail; Simon Sheikh, National Director of Get Up!; Amanda Tattersall, Coalition Director of Sydney Alliance; or John Dee, Founder and Managing Director of Do Something.

Not surprisingly, social media was one of the major reoccurring themes in the panel's discussions of community advocacy and change. Brett Solomon spoke of the use of new technology in the third world to bring about prosperity and dignity through vibrant, democratic digital activism and stressed the importance of advocating for uncensored internet as a basic human right. He noted the challenges arising in the face of this information liberation and stressed that the tensions between technology, the law and human rights which have recently been on display (eg. Egypt, London) cannot be solved by shutting down the system (as proposed by David Cameron) but rather by addressing the issues which have caused the uprising in the first place.

"What best counters bad speech is not its silencing, but more good speech" - Brett Solomon   

There seemed to be a general consensus among the speakers that while social media is altering the way we advocate for social change, it is still merely a tool, enabling the people and issues which have in many cases pre-existed it to connect, communicate and collaborate in meaningful ways. Anna Rose noted that the internet is undoubtedly an important element in supporting change from the bottom up but stressed the importance of advocacy groups integrating both online and offline involvement to creatively engage the 'whole individual' and thereby create a stronger and more committed foundation in the push for change. She attributed the success of the AYCC and similar advocacy groups to the employment of a ladder of engagement in which members become, and more importantly stay involved, as a result of three key factors:

1. They can see the group is having a concrete impact.
2. They are socially engaged.
3. There is continued learning, personal growth and development.

One of the most popular tweets from the night was the quote by Anna Rose: "We must do the impossible to avoid the unimaginable". For me the most inspiring thing about these words was that she (and every other person on stage) was a personification of them. As founder of the AYCC Anna's work has contributed to having a concrete impact on climate change policy; Brett Solomon founded the International Youth Parliament through Oxfam to tackle poverty, conflict and globalisation and is currently a campaigner for digital freedom; and Darryl Nichols has contributed to the reuse and recycling of 72,585 items (or 55,000kg of potential landfill) through the Garage Sale Trail. And that's only skimming the surface, I could easily create a detailed blog post on each and every one of the panel members and their  achievements and contributions to society but instead I'm going to give you the link to the video recording from the night so you can find your own inspiration among the brilliance: City Talks 2011.

City Talks are free events presented by the City of Sydney and Sydney Morning Herald. Visit What's On Sydney and subscribe to their email list to find out more about upcoming events.

The Right to Choice: in life and in death

I am not well equipped to deal with death and I am not alone. I am well aware that I (along with many others) have a false sense of indestructibility, a sense which not only denies the certainty of my own mortality but also that of the people who surround me. When death comes it is shocking and unbelievable. It is completely incomprehensible that at any moment my life or the life of somebody I love could be taken away. Even the act of writing about it seems morbid and unnecessary. "What happened to the 'glad game'?" you're saying, "let's get back to the random acts of kindness and smiles and happiness", and as I'm writing this I'm fighting the urge to do exactly that. The reason I will continue to fight that urge (for today at least) is a documentary I saw yesterday at the Sydney Film Festival which has left me contemplating death, not in a morbid or depressing way, but as it applies to life and the choices we have when that life is coming to an end.

Winner of the documentary category at this years Sundance Film Festival, 'How to Die in Oregon' is a powerful and moving exploration of the legalisation of doctor-assisted death for terminally ill patients in the State of Oregon, USA. The law which was enacted in 1997, was passed on the grounds that it was not doctor administered euthanasia (which is a physician delivered lethal injection) but rather a self-administered medication taken by physically able (although terminally diagnosed) and mentally fit patients. The film documented the final journey of several patients who had chosen to utilise the Death with Dignity Act, providing them the ability to obtain a prescription of lethal medications from a physician for voluntary self-administration if and when they chose.

Physician or family assisted death is understandably a very controversial ethical and medical debate, the fight for survival is strong in all of us and the voluntary ending of life is incomprehensible to many but  I think one of the most poignant points that each of the patients made when posed with opposition from people who disagree with the Act was that "I am not choosing death. I am simply exercising my right to die with dignity". Given the choice, each and every one of them would have chosen life but as untreatable patients of cancer and other degenerative illnesses, death had already chosen them. And we aren't talking about the type of death where you quietly and painlessly slip away in your sleep, these people were facing long, painful and humiliating declines in which they would suffer greatly for months, slowly losing control of their bodily functions and all quality of life. It is worth noting that not all patients in the documentary ended their lives using the medication, for some it was more for peace of mind than for actual use. And for those who did self-administer the medication, they did so after much counselling and consultation with physicians and social workers, and only at the point when the pain and suffering had become too much to continue on.

Not surprisingly their stories moved me to tears on more than one occasion. Watching those people and their families coming to terms with their fast approaching mortality was extremely confronting. It left me contemplating my own life and health with extreme gratitude as well as how I would handle such a situation if it were me or my friends or family. I pray that I will never find myself or someone I love in their shoes but the fact is that there are many people facing terminal illness every day and in Australia we are not provided the legal right to die with dignity. Whilst I understand that many people for religious or other reasons are opposed to such an option I strongly believe that each and every individual should have the right to make that choice for themselves. Article Five of the Universal Declaration of Human Rights states that: ''No one shall be subjected to cruel, inhuman or degrading treatment" and I believe the right for a death with dignity falls into that category. Apparently I am not alone in my thoughts on the subject, with 85% of Australians believing in the right of the terminally ill to obtain medical assistance to end their lives, but still it is not legislated.

If you respect the right to choose please visit these websites to find out more and support the legislation of the human right to die with dignity in Australia:

Your Last Right
Death With Dignity NSW